A new partnership to provide valuable mental health support to those affected by XP and their families.May is Mental Health Awareness Month and we are thrilled to be able to officially announce the launch of this new project, delivered by Action for XP and Rareminds, and funded by the British Association of Dermatologists. Rareminds is the first specialist, non profit, rare disease counselling and psychotherapy service in the UK (and possibly globally), their team has been providing online counselling and wellbeing services for rare disease charities since 2014.
Please see the flyer below for some additional information, and if you would like to know more reach out directly to lead counsellor Zubyda via email on [email protected], marking 'Action for XP' in the subject box. We are so grateful to Rareminds and the BAD for making this important project come to life. Find out more about Rareminds here: www.rareminds.org/ *Please be aware that at this time we are only able to extend this service to UK families.
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