Welcome to
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What is XP?XP = xeroderma pigmentosum. XP is an autosomal recessive genetic condition (this means it has no bearing on whether you have X or Y chromosomes). XP typically effects the skin, but certain patients also have problems with the central nervous system as well as the eyes and ears. There are less than 200 people with XP in the UK and similarly low numbers all around the world.
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Little Ted & Friends explain what XP is.Explaining XP to young people can be hard due to the complex nature of the condition. Here our hero Little Ted, and his brother Baby Rhu along with their friends help explain all.
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Supporting You
As a solely volunteer run organisation we work hard to streamline our processes so that we can get the right help to you at the right time. To help us with this, please use this link to let us know how we can help you. A member of our team will then reach out as soon as possible. |