Welcome to
Action for XP

Action for XP (previously known as Teddington Trust) is a registered charity that offers support and guidance to individuals and families affected by the ultra-rare DNA repair disorder, xeroderma pigmentosum.​
Equally important to us are our number of ongoing special projects which look to improve quality of life and general wellbeing by delivering practical solutions and promoting international collaborations and community building.

What is XP?

XP = xeroderma pigmentosum.  XP is an autosomal recessive genetic condition (this means it has no bearing on whether you have X or Y chromosomes). XP typically effects the skin, but certain patients also have problems with the central nervous system as well as the eyes and ears. There are less than 200 people with XP in the UK and similarly low numbers all around the world.​

Little Ted & Friends explain what XP is.

Explaining XP to young people can be hard due to the complex nature of the condition. Here our hero Little Ted, and his brother Baby Rhu along with their friends help explain all.

HOW YOU CAN HELP

Want to Donate?

We fundraise for projects to help improve
​the lives of those affected by XP.

How to
Get Involved
Supporting You
As a solely volunteer run organisation we work hard to streamline our processes so that we can get the right help to you at the right time. To help us with this, please use this link to let us know how we can help you. A member of our team will then reach out as soon as possible.
Teddington Trust