Supporting our international families

We are pleased to confirm that Shadow Jumpers, a US-based non-profit organisation dedicated specifically to supporting individuals and families affected by photosensitive conditions, will be supporting our international XP community moving forward from Spring 2026.

Founded by people personally connected to rare sun-sensitivity conditions, Shadow Jumpers exists to create meaningful experiences, build community and help families live more fully despite the challenges of living with extreme light sensitivity. Their work focuses on practical support, advocacy and creating opportunities that improve quality of life for children and adults living with photosensitive conditions. 

As part of Action for XP’s service transition, Shadow Jumpers has agreed to work closely with our international community to determine their needs moving forward and strive to fulfil that need in the months and years ahead. 

They will also host our educational and practical resources on their own website moving forward and serve as a main point of contact for the international XP community we served, offering ongoing support, information and connection.

“We are incredibly excited to see where Shadow Jumpers take this next chapter for international outreach. Their commitment ensures that our global XP community will continue to have access to practical help, trusted information and a dedicated organisation that understands the unique challenges of living with a rare photosensitive condition. We believe this is a very positive development for the international XP community and we look forward to seeing them build on our legacy as they expand further internationally.”  Nicola Miller, Action for XP
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​Shadow Jumpers say: 

“The impact Action for XP has had on their community cannot be overstated. Their years of advocacy, support, and care created a lasting legacy that has touched countless XP families across the world. That work helped pave the way for other photosensitive organizations like Shadow Jumpers, and we are deeply honored to continue building on what they started. We look forward to working alongside our new global partners to ensure XP families continue to receive the support they deserve.” Craig Leppert, Shadow Jumpers

If you would like to learn more about Shadow Jumpers, please visit their website at www.shadowjumpers.org or you can contact them directly at: [email protected]

To be kept up to date on their programmes and initiatives please sign-up to their mailing list here: https://www.shadowjumpers.org/newsletter